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Support a disabled person in Peru

   
 
 
 

In January 2011 MySmallHelp decided to register as an official non profit organisation in Peru . The decision to register MySmallHelp Peru was made following a chance meeting with inspirational Lurdes Juno Mamani.

Leander Hollings, president and founder of MySmallHelp Peru was introduced to Lurdes in June 2010 and was asked if she could help her in any way. Leander quickly accepted her role as godmother and committed to finding a way for Lurdes to have access to an education, training and a wheel chair.

Lurdes is eighteen years old and has a condition called osteogenesis imperfecta, or brittle bone disease, which causes bones to break, bend, and twist easily . Lurdes lives in Rumira with an abusive and alcoholic mother and step father. Her alcoholic father left her mother when she was young. Lurdes suffers from neglect. . Lurdes can´t walk. Until 9 months ago, Lurdes was immobile and spent all her time at home, never attending school or venturing out into the community. During the second half of 2010, Lurdes received a wheelchair from a Spanish donor and began to receive private tuition lessons at home from a local teacher and was introduced to Cusceñan jewellery teacher. Lurdes jewellery business is growing steadily. She is now out and about in the community more but she still needs support to be able to get in and out of her wheel chair and to access certain areas. Lurdes is very keen to learn to read and write but is progressing slowly because her school teacher is currently only visiting her for 6 hours a week. MySmallHelp would like to provide Lurdes with a laptop with reading and writing programmes and a private teacher to help Lurdes to learn to read and write a soon possible. MySmallHelp is also aware of the dramatic changes that have happened to Lurdes in a short period of time and is keen to find psychological support and a more stable home for her. Lurdes has a warm character and is an inspiration to everyone she meets and she is the reason that MySmallHelp Peru exists and wants to work towards helping to change the lives of more disabled people like Lurdes.

MySmallHelp has decided to partner with Awamaki, a small community-development NGO based in Ollantaytambo.

Awamaki runs community development programs in Ollantaytambo that encompass cultural preservation, health, education and sustainable tourism. Awamaki’s health program is dedicated to improving the health of the people in Ollantaytambo, Peru and the surrounding mountain communities of the Sacred Valley.

Established in early 2010, Awamaki Health is in the beginning stages of exploring ways to improve the quality of healthcare available to the population of Ollantaytambo. Awamaki Health supports the primary clinic within Ollanta and three other rural clinics. Their goal is to integrate Awamaki health volunteers into the community, and to create sustainable health programs that encompass education as well as clinical care and other areas that address the needs of the community.

Disability Outreach Campaign

A project recently undertaken by Awamaki is an assessment of the needs and services provided to disabled person in the Ollantaytambo region. They worked with the central ministry of health, community leaders, and the municipality to plan their community visits. In December Awamaki was joined by a neurologist, Dr. Sakib Qureshi, who helped lead the census of disabled individuals.

The survey was given by the Awamaki team which included Dr. Qureshi, a Quechua-Spanish translator and health volunteers. During the visits, the neurologist gave a full examination, made a diagnosis and offered recommendations. They gathered information regarding each person’s previous care and treatment, and also about their quality of life. They spent time walking to each person’s house and spending about an hour assessing their medical condition and asking questions. At the end of each interview they thanked the family by giving them a package of basic foodstuffs.

After a month of the outreach campaign Awamaki had talked to 50 people living with disabilities and visited 13 different communities. They found that lives of disabled people in the region are often kept hidden and out of reach of medical care. Poverty, social stigma, unavailability of proper medical attention, and lack of mobility are just a few of the challenges that disabled people regularly face. Now that Awamaki has begun working with some of these people and learning about their needs, they are seeking support from organizations, groups, and individuals around the world who want to help improve the lives these people.

 
 
 
  SAYURI
General summary
 
  Name: SAYURI
  Age: 9
  Location : PERU
 
   
 

Sayuri is a nine year old girl who suffers from cerebral palsy. She lives with her parents, Rose and Clement, and her 13 year old half-brother. Sayuri’s development was always slow for her age; she learned to walk at three years old and couldn’t hold her head up without assistance until the age of two. Since the age of three she has been receiving physical therapy treatment and has learned to walk, although with some difficulty. Her physical therapy is continuing with a professional in the Arco Iris school, where she also studies. Sayuri and her family live in a one-room accommodation, where they all sleep, eat and cook. Her father is cook, but can’t find work in his profession and works in agriculture and construction. Rosa, her mother, is a housewife and occasionally works in a local hotel. Due to her family’s meager income, Sayuri requires economic support to cover the costs of daily transportation to Urubamba, allowing her to continue her education at Arco Iris.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for SAYURI

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR SAYURI      
 
 
  ALEXANDER
General summary
 
  Name: ALEXANDER
  Age: 13
  Location : PHIRY, PERU
 
   
 

Alexander is thirteen years old and lives in a small community just outside of Ollantaytambo called Phiry. He has been living with a severe form of cerebral palsy since birth. Alexander’s father left when Alexander was younger and now he lives with his grandmother, while his mother travels to work in Aguas Calientes near Machu Picchu during the week. Although he can’t talk, he speaks vividly with his eyes, smiling in appreciation of volunteers who come to give physical therapy or sit beside his bed to read a story.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for ALEXANDER

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR ALEXANDER      
 
 
  LOURDES
General summary
 
  Name: LOURDES
  Age: 18
  Location : RUMIRA, PERU
 
   
 

Lourdes Juno Mamani is an 18 year old girl who lives in a little village a couple of hours from Cuzco in the Sacred Valley in Peru. It’s a beautiful place to live; rural, natural, tranquil but very very difficult for a young lady in a wheelchair. For the first 18 years of Lourdes’ life she was confined to the small village of Rumira and primarily to her family home. Her parents are both alcoholics, her father has since left the family, she has a sister and three half-brothers and sisters. Lourdes has only a few wishes…. that she can have an education, that she can leave Rumira and that she can earn herself some money. Thanks to a kind donation from Spain last year Lourdes does now have a wheelchair and with the help of My Small Help gets out and about at least twice a week into towns close by that she’d never known in the earlier years of her life. She loves looking her best, playing with make-up, painting her nails and most of all reading. Lourdes is always questioning the My Small Help volunteers about new English words when we see her. Lourdes wants to learn as quickly and as efficiently as possible but the local teachers believe it best that she is taught at home by visiting teachers. The problem is cost, in order for Lourdes to have enough weekly lessons to make progress it costs a lot of money and many teachers are not keen to visit her more than three times a week for a few hours. It’s simply not enough. A fantastic jewellery designer and maker in Cuzco sees Lourdes regularly and has already taught her to work with silver and natural products too. She enjoys making the jewellery and recognises that she can make a living from it, selling at markets, fairs etc. She is currently working with hemp to make organic products for a local Sacred Valley bio-fair. We can help Lourdes with sponsoring her education and home lessons, a laptop which will aid her jewellery design as well as schooling and ideally helping setting up her business so that’s she able to move to more accessible Cuzco sometime in the near future.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for LOURDES

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR LOURDES      
 
 
  LIDIA
General summary
 
  Name: LIDIA
  Age: 6
  Location : HUILLOC, PERU
 
   
 

Lidia is six years old and lives in an indigenous community outside of Ollantaytambo called Huilloc. She suffers from a genetic disease called Hypothyroidism, which causes slow developmental progression. Throughout her life, she will need hormone replacement and regular testing to monitor for appropriate maintenance of thyroid hormone levels for prevention of further developmental delay. She is falling behind in school because of her condition and is being visited for regular tutoring by a volunteer. She will continue to be behind her peers if she doesn’t receive testing and medication. Her family is emotionally supportive, but can’t spare finances for trips to Cusco, where she would seek examinations. She has a vibrant and vivacious personality, almost always breaking out in laughter.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for LIDIA

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR LIDIA      
 
 
  RICARDO
General summary
 
  Name: RICARDO
  Age: 8
  Location : CACHICATTA, PERU
 
   
 

Ricardo is eight years old and has congenital paralysis of his left eye and extra ocular muscular palsy. He lives with his family, including three siblings in a small community called Cachicatta. He currently needs corrective surgery to lift his lid. If he doesn’t receive surgery, he will eventually succumb to blindness in his left eye and thus never be able to use it again. He is an active boy who enjoys playing with other kids and especially enjoys partaking in chess matches. His family has been saving up for the surgery, but it will drain them of expenses that otherwise would go to pay for food and shelter for their entire family

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for RICARDO

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR RICARDO      
 
 
  ROXANA
General summary
 
  Name: ROXANA
  Age: 11
  Location : CACHICATTA, PERU
 
   
 

Roxana is an eleven-year old girl living in a small community called Cachicatta. Roxana lives with her six siblings and parents, who work in the fields during the day. Roxana has a form of epilepsy that causes her to have seizures three to four times a day. She also suffers from developmental delay that may be a form of autism spectrum disorder and is worsened by ongoing seizures. She has never been to school because of her condition and spends most days in the yard in front of her house, playing by herself. Roxana has failed the antiepileptic medications available locally and needs more specialized attention in Cuzco which will include electroencephalogram testing and brain imaging to determine the type and extent of her condition so that she can be given the appropriate medication, which her family cannot afford. She is currently being visited by a volunteer who is helping with her social and mental development, with hopes that in the future she can enroll in school and interact with her peers.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for ROXANA

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR ROXANA      
 
 
  ANITA
General summary
 
  Name: ANITA
  Age: 10
  Location : CUSCO, PERU
 
   
 

Anita is a ten year old girl from Cusco who goes to school, lives with her sisters and parents, and wants to enjoy life to the full. Anita was born with cerebral disabilities and hip problems too. In her first few years of life, Anita had many operations. Anita’s father is self-employed and her mother stays at home to look after Anita full time. Anita goes to school and enjoys it but is starting to get behind in class and is finding it more and more difficult to keep up with the pace of education. Additionally due to her hip problems Anita also has to wear nappies all of the time. This is a large cost for the family to carry every day. We know we can help Anita’s quality of life with funds for nappies, extra-lessons to keep her schooling standard on par with the rest of her class, a tape recorder and a laptop too. The long-term goal too would be to aid her parents to create a business that lets her mother stay at home and work alongside caring for Anita. Anita’s mother is a super baker and her father is talented and able to help build an oven and stove for the family. This could then be used on a daily basis by the mother to bake goods and pastry products to sell in Cuzco and therefore create a sustainable income for the family.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for ANITA

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR ANITA      
 
 
  MARIO
General summary
 
  Name: MARIO
  Age: 58
  Location : PERU
 
   
 

Mario Escobedo: When Mario was four years old he came down with Polio that has since affected his muscles and bones, particularly in his right side. He is fifty eight years old now and lives with the effects of the childhood affliction. His right wrist contracts inward causing nearly complete inability to use his hand for daily tasks. His right leg has decreased muscle tone and strength, while his ankle is in pointer flexion such that he can no longer use his right foot. Mario is a survivor because despite such difficulties he maintains a job and a positive attitude about his condition. Mario’s right side contractures will continue to deteriorate with time without the help of braces and regular physical therapy. Mario currently receives weekly physical therapy from a volunteer. His treatment and subsequent improvement rely on a specialized shoe that will stabilize his posture and allow him to bear weight on his right side as well as a cock-up splint for his right wrist that may enable him greater use of his fingers.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for MARIO

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR MARIO      
 
 
  CESAR
General summary
 
  Name: CESAR
  Age: 26
  Location : PERU
 
   
 

Cesar Bendanio Mirada: Cesar is twenty six and has Epilepsy as a result of a traumatic accident when he was just twelve. He is the primary caregiver of his elderly mother and due to this responsibility and his frequent epileptic attacks, he suffers from depression and anxiety. Work is impaired because he often needs to leave when he feels an attack coming on and after an attack he is incapacitated for several hours. He lives in a small mud hut and has no finances to spare for medication, which he desperately needs to take in order to lead a functional and productive life.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for CESAR

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR CESAR      
 
 
  VILMA
General summary
 
  Name: VILMA
  Age: 20
  Location : PERU
 
   
 

Vilma Cjuro Sincha: Vlima is a twenty year old woman living in the indigenous mountain community Huilloc. She was born with a severe form of mental retardation that impairs her ability to feed herself, bathe herself, or function independently. She had been in a facility for ten years that had a range of services to help her, but she is ineligible to remain in the facility due to her age. She lives with her mother who sacrifices work and outings to remain at the house. Vilma’s mother deeply cares for her but knows the most appropriate care could be given by professionals in another facility. This is not a possibility because there are no institutions that take adults in the area. For now, Vilma is being visited by a volunteer to relieve her mother of caretaking responsibilities. Vilma is a tactile and auditory individual who enjoys sitting outside listening to music or touching various textures. A small donation would allow for Awamaki to buy her a radio and books that would stimulate her during these visits and while her mother is otherwise busy working.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for VILMA

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR VILMA      
 
 
  GEREMIAS
General summary
 
  Name: GEREMIAS
  Age: 14
  Location : PERU
 
   
 

Geremias Sinchi Usca: Geremias is a fourteen year old boy living the in the indigenous mountain community Huilloc. He has seizures multiple times a month, which impair his ability to regularly attend school and strains his relationships with friends and family. Despite such obstacles, Geremias is very hard-working and intelligent and is ranked as one of the top students in his class. Epilepsy can be progressively detrimental, causing developmental delay if the attacks are left untreated by medication. Geremias needs an EEG to determine what type of medication is appropriate to treat his seizures.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for GEREMIAS

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR GEREMIAS      
 
 
  WLIAN
General summary
 
  Name: WLIAN
  Age: 22
  Location : PERU
 
   
 

Wlian Santos Coronel: Wlian is a twenty two year old from a small town outside Ollantaytambo called Cachicatta. He fell off of a donkey when he was seven years old and has since suffered from epilepsy secondary to traumatic injury. He has been taking the appropriate medication, but due to his family’s limited finance has stopped. He shows evidence of a learning disability and developmental delay due to his condition. At his age he could be supporting his family, but he can’t work at all because of the frequency of attacks.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for WLIAN

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR WLIAN      
 
 
  NATIVIDAD
General summary
 
  Name: NATIVIDAD
  Age: 64
  Location : PERU
 
   
 

Natividad Holgado: Natividad is sixty four years old and has complete lower-limb paralysis, due to a spinal cord infection, and severe hearing loss, as a result of the abuse of her brother. After the damage to her hearing, her brother has since left the house and she now resides with her niece. Natividad is quite independent and crawls around her room, cooking and doing household chores by herself. She is being visited by volunteers who provide both company and assistance with tidying up. For now, the strain of her daily mobility could be relieved with the use of a scooter. Additionally, she suffers from a pain from a recent fall as well as gird and needs daily medication, which she cannot afford.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for NATIVIDAD

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR NATIVIDAD      
 
 
  LURDES
General summary
 
  Name: LURDES
  Age: 3
  Location : PERU
 
   
 

Lurdes is a three year old girl from the town of Yanahaura. Lurdes was born with Down Syndrome, which causes speech and motor learning impairments. Her father left her mother when Lurdes was born because the situation overwhelmed him. Her mother works tirelessly at the local clinic, dividing her hours between work and caring for Lurdes. Lurdes entertains patients at the clinic while her mom is working with her precious smiles and silly antics. Lurdes would benefit from regular visits from a speech therapist and occupational therapist to learn skills during a time in her life where retention of such skills are greatest.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for LURDES

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR LURDES      
 
 
  ANDRES
General summary
 
  Name: ANDRES
  Age: 21
  Location : PERU
 
   
 

Andrés is a 21 year old young man who was born with cerebral palsy. He has lived almost his entire life in the Clínica San Juan de Dios in Cusco, Peru. He was abandoned by his family, who were from one of the high altitude communities above Calca. He has received a series of operations, not all of them successful, with the goal of improving his mobility of his hands, which at first glance seem completely non-functional. Andrés, with strength and a determination to do more each day, has dispelled this idea, and shown us what he, and his hands, are capable of. Andrés is a very intelligent young man, but was never able to attend high school regularly. He is extremely capable, and very excited to work and “become someone useful”. MySmallHelp is looking for a sponsor to be able to provide an education to Andres. Andrés possesses an amazing personality, evident from the first time you meet him. He lives alone and in difficult conditions, in a rented room near the clinic. This room is in no way equipped to accommodate someone with a disability; he can’t enter or leave the room alone, the bathroom is far removed, and it is impossible for him to get there in his wheelchair. In short, Andrés needs a better place to live. He works making beautiful woven bracelets, which he sells incredibly cheaply in the street, making such a small income that its miraculous he can survive. Living in such precarious circumstances shows that Andres is a fighter, and that he would truly benefit from our help.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for ANDRES

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR ANDRES      
 
 
  LEONEL
General summary
 
  Name: LEONEL
  Age: 6
  Location : Ollantaytambo, Peru
 
   
 

Leonel is a six year old boy, happy, active and lively. He lives in a small home with his mother and two sisters. His father left the family and doesn’t visit or support them in any way. The family’s only source of income are the eggs that Leonel’s mother sells in the plaza of Ollantaytambo, which hardly cover health, education, clothing and food for her three children. Leonel has never learned to speak and has a malformation on his right foot. He communicates only with gestures. Medical tests have proven him to be deaf in both ears. He had never been enrolled in school, but last year begun attending the Arco Iris school, located 25 minutes from his home in the town of Urubamba. In December 2011 a Canadian volunter raised money to buy Leonel hearing aids.

He will just be using one to begin with to get used to it and it will only to be used at school at first. The hearing aids are just a small step towards the eventual goal of him being able to communicate like any other child his age, but with his intelligence and energy, we're all sure he can carry the project the rest of the way.

However, in March 2012 the Peruvian government intends for all children with a variety of special needs to be integrated into the regular school system which, without any linguistic skills, Leonel is going to find it very difficult. Therefore he still very much needs our support to access the MSH bus service to continue to travel to the Arco Iris special school in Urubamba.

 
 

MySmallHelp Peru is looking for someone to sponsor or buy a gift for LEONEL

YES, I WOULD LIKE TO SPONSOR OR BUY A GIFT FOR LEONEL       
 
 

UK Registered Charity No. 1123830
Nepal Registered Charity No. 2656/381/562
Peru Registered Charity No. 20490472313

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